I am writing this post on the day before Mother’s Day because I get the honor of having my daughter, her husband and my grandson with me tomorrow, Mother’s Day. What a great gift she is giving me as I know my daughter hates getting in the car and traveling across town but she is doing it to honor me and that makes me feel very humbled and grateful.
On bold moves
This week I made the bold move of increasing my T3 dosage. To many that may seem like no news. For someone like me who went through an entire year of incremental increases of T3 gradually exceeding the dose my body could tolerate it is a bold move indeed.
I will try to provide a short timeline for those who are interested otherwise skip down to “Along came T3″. I started my T3 only in April 2010. I decided to try T3 only because nothing was helping an irregular heartbeat I had suffered with for about a year prior to starting T3-only.
When I was first diagnosed with hypothyroidism about 15 years ago I was prescribed what I now call Syncrap, T4-only. Then around 2005 I got tired of always needing to increase my thyroid meds and stopped taking them. Just for the record, that was not a good idea. This in turn eventually caused my adrenals to burn out, a.k.a. adrenal fatigue. Finally in about 2007 I started seeing Dr. Robert Bruley in Linden Hills, MN. He put me on compounded T3 and T4 adjusting the T4 according to my symptoms but keeping the T3 very low.
I stayed on T3/T4 for a year or two but my heart continued to give me troubles. I knew from my symptoms that this was not a weak heart or blocked arteries. It would come on at certain times of day and certain times of day it would be non-existent. Exercise didn’t bring it on, stress didn’t bring it on but when it came on it was so severe it would make me cough as if I had asthma.
Finally in late 2009, I convinced Dr. Bruley to let me try Armour. I felt a drug that supplied me with T1, T2, T3 and T4 was superior to one that was mostly T4 with a tiny bit of T3. I was probably correct but it still didn’t solve the problem. My palps were disturbing but thankfully not life threatening.
Along came T3
Then in April of 2010 I took a really bold step and started T3-only. I did so without Dr. Bruley but with the wonderfully helpful people on a thyroid forum who looked at my RT3 blood test and told me I had thyroid resistance and needed T3-only to clear the T4 that was blocking the all important T3 from entering my cells. These folks had all been under treated by allopathic doctors and some had come very close to dying as a result of T4-only thyroid drugs. They had found help in taking T3-only but first they had to clear the T4 out of the thyroid cell receptors and that my friends is the bit of Hell I mentioned earlier.
It took me 9 months to finally feel normal again after starting T3. That was about 4 months of checking my temperature three times a day. 5 months of hand tremors. 6 months of horrible sleepless nights. All that but my heart was beating quite regularly at this point, not all the time but more and more it was not beating irregularly and no more coughing, none. Finally at 9 months came a realization that I had to dramatically decrease my T3 dosage. I couldn’t take the sleepless nights nor shaking hands. I gradually dropped my dose to 37.50 mcg at dose where I felt comfortable and my heart still beat normally.
At that point I felt good and decided I just couldn’t keep concentrating on the negative. I needed to be well. I quit taking my temperature three times a day and got on with my life. I knew 37.5 mcg wasn’t enough but it was okay for a while. About 7 months ago I increased gradually to 50 mcg and have been at that dose ever since.
At 50 mcg I had almost normal energy, my hair loss decreased, my sleep was reasonably good. I even slept on my left side at night (on your left side you can hear your heartbeat and when it is irregular that is disturbing). However, I knew I should wake up feeling more aware and sharp than I was. Even when I started my B12 shots, instead of feeling much better I felt only marginally better and, as time passed I felt even more lethargic than I had been feeling.
The good news
I think this makes a short blog a long one and I am sorry for the verbosity but we now move onward. This week I finally took a basal temperature and when it read 97.3 I knew it was time to increase my T3 and I felt certain my body could handle an increase. On Tuesday I added 6.25 mcg to my 11 a.m. dose. The first day I felt no change whatsoever. The second day I could tell my pulse was slightly higher and my sleep was better.
So far things are working rather well. My temperatures were up on the second day but now four days later they are down again. My blood pressure is closer to normal (109/70). My pulse is normal (70). I don’t feel so muzzy headed when I get up in the morning. With my temperatures hovering around 98 during the day I know I am not done. I need more T3 and will aim for 75 mcg as that is the level that most people need to feel really good but if at anytime the tremors return or I feel hyper the dose will change. That is the beauty of T3-only, you can lower it and see quick improvement.
Here is why I think it is working this time. It is only a theory mind you but I think taking the B12 shots and increasing my cellular levels of B12 has contributed to allowing what T3 I take to actually get in to the cells. When the T3 is finally allowed in to the cells you go quite hypo (slight weight gain, sluggishness) because you are using it all and need more.
I also think my inadequate levels of selenium, zinc, CoQ10 and Inositol were possibly keeping my cells from clearing all the T4 out and/or allowing all the T3 in to the receptors. I am now taking therapeutic doses of all those nutrients to get my cellular levels up where they belong.
I could be wrong so don’t take me to task about my insight. I am not a doctor, I am a dental hygienist who has successfully treated her thyroid resistance with the help of the “village”. With that said, if you are still having troubles with getting your T3-only treatment to work for you (or any thyroid treatment for that matter) may I make a suggestion? Get a Spectracell Nutrient test. It is clear to me that we really must test everything we can at the cellular level not just a normal blood test.
If you want more information on the trials and tribulations of going it alone just go here. I have pages and pages of experience you can read through. Obviously I am still learning and I need to keep an open mind and an informed one but for today increasing a minute amount has made a difference and I feel good.