Archive for the ‘Spectracell blood test’ Category

Magnesium Stearate, Maltodextrin and More

IMG_1917 (2)What a difference a week makes. Last Sunday, my writing day, was as beautiful a day as one could special order if that were possible. Today it is pouring rain and if you look closely, distressing as that is to do, you can see some white crystalline objects mixed in. Urgh! Oh well, I shall not complain. I have a new kitchen faucet being installed and the workman (aka Spousal Unit) does not need to be tempted out-of-doors by an Indian Summer day.

I can report that THE project has only just begun and already he feels like he is in the midst of a “reality show where you are working against a time clock” because some thingamajig is leaking constantly and he needs to be done asap. The sighs are audible and frequent and I predict a slight meltdown at some point.

Yup, I think this weather is just the ticket and by the end of the day I will have a new faucet installed that hopefully will work.

This week on Facebook

As you undoubtedly know by now I have a Facebook page called, what else, Krisinsight. This week a friend of mine asked me about supplements I take and had I ever thought about the supplements working against each other? Another member of Krisinsight had the correct answer “Yes, of course.” I have tried many supplements over the years and I worry or wonder about each and every one. I was comforted long ago by my then functional medicine doctor, Robert Bruley. I told him I had a pantry full of supplements and he confided that he and his wife did too.

While that seems like a lot what also made me feel better was he and his wife had their blood tested all the time to check the effects of these supplements and they basically saw good results or they quit taking them. Some lowered homocysteine levels or CRP levels and others showed positive results in lowering liver enzymes. All in all, the supplements they took showed positive results and, to me, that was comforting and reassuring.

Spectracell results

Dr. Bruley was a big proponent of Life Extension formulas and I started taking several of their supplements at that time (2007 or thereabouts). I also took some others like Dibencozide and methylcobalamin all of which had fillers and additives but were recommended by my thyroid group.

Around this same time I heard a discussion between Dr. Mercola and a Dr. Klinghardt regarding a micro-film that might form from using supplements with stearates. Also Russell Blaylock wrote a book called “Excitotoxins: The Taste That Kills” and I read it around the same time. One common filler is maltodextrin, an excitotoxin due to the way it is manufactured. Then going gluten-free  added new challenges to anything with additives and fillers. Even additives listed as “natural flavors” could contain gluten. Crikey! It was all becoming too, too difficult.

Then the coup d’grâce for the use of additives and fillers was my Spectracell test I had done in late 2011. Until this time I had taken the above listed supplements and one called “Anti-Alcohol Antioxidants” in addition to others that contained a full spectrum of antioxidants, CoQ10, selenium and zinc, not to mention up to 10,000 mcg of B12 sublingually every day.

In my blog from that time I wrote the following:

Vitamin B12, Selenium, Inositol, Zinc,  CoQ10 and my Spectrox (comprehensive antioxidants) were all listed as deficient. Why is this troublesome? B12 is often noted to be low in people who have dementia and a B12 deficiency actually mimics Alzheimer’s Disease.Selenium deficiencies are rare (the SU says he already knew I was weird) but can contribute to hypothyroidism. Inositol levels must be optimum to assure healthy brain function and even healthy hair growth. Zinc is a common deficiency and most often noted by white spots appearing in the nail bed but it also can lead to excess hair loss. CoQ10 is essential for healthy breasts and heart. As for antioxidants they are our life blood as necessary as the air we breathe.

What would you conclude?

Knowing you were taking all the nutrients that you have just tested low in what would you do? Also knowing that you, or, in this case, I, have a history of dementia in the family as well as heart disease, what would you surmise from these results? The facts were I was already taking more antioxidants and vitamins than the lab recommended in their prescription to improve my levels that were below acceptable levels. My overall low antioxidant level was really distressing to me given the supplements I was taking. Even though Dr. Bruley told me he was quite impressed with how many nutrients (like Vitamin D, Vitamin C, Vitamin B6, etc.)  were at or above average levels the things that were below average bothered me considerably.

With some enlightenment thanks to my Spectracell test,  I started looking very carefully at supplements that have fillers and additives as the words of Dr. Mercola and Dr. Klinghardt (Klinghardt as been somewhat discredited at the time this is posted in his Lyme Disease work and Chris Kresser just posted this article) rang in my head.

That doesn’t mean I never take a supplement that has stearates or rice powder but it does mean I don’t like them and would prefer no additives or fillers. I don’t see the reason for them and I have contacted a number of companies about adding them unnecessarily only to be rebuffed.

Ignore me and thousands of others if you want but the fact remains additives  and fillers are really not necessary they aid in the manufacturing process and they make supplements unnecessarily large (only a problem if you have a dry mouth as so many thyroid patients do).

Krisinsight

In answer to my friend’s question, I think about the supplements I take and when they don’t work I quit taking them. I have been particularly fond of the formulas that Life Extension puts together but I don’t like their use of rice powder, maltodextrin and stearates. Also if you take a formula of assorted nutrients how do you know what is working and what isn’t? What if one thing actually would make you feel better but mixing it with other things is making you sick? Thus, I try to take single ingredient supplements until I know the effect each ingredient will have but again don’t hold me to these words as I can think of several formulations I take right now.

I, as you know, use very few scientific studies to prove my unique observations. My personal experience is what Krisinsight is all about. You can take it for what it is, one person’s experience with her health and use it accordingly. My experience has taught me that taking supplements with additives and fillers apparently did disrupt the absorption of these nutrients.

This poor absorption issue may have something to do with my hypothyroidism as a person afflicted with hypothyroidism may tend to have absorption issues, aka leaky gut. Especially for others, like me, who might have absorption issues avoiding fillers and additives may be something to consider. For instance, if you are low in B12, it might be a good idea to talk to your physician about methylcobalamin injections as even sublingual B12 may not be helping you increase your levels.

As for the aforementioned faucet project. I can happily report that my faucet has been installed and long before I have finished writing. Yea! I guess the profane words stayed firmly stuck inside the installer’s brain because I heard nothing other than the original “reality show” comment and several sighs. I asked him about this and he told me sometimes thinking them makes you feel just as good as voicing them. I am married to a truly gentle man and I am grateful. The new faucet is lovely and nary a drip falls after two years of a faucet that was “fixed” but dripped profusely. Now if the weather would quit dripping all would be well.

Santé,

Kris

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How Do You Know When to Increase?

I am writing this post on the day before Mother’s Day because I get the honor of having my daughter, her husband and my grandson with me tomorrow, Mother’s Day. What a great gift she is giving me as I know my daughter hates getting in the car and traveling across town but she is doing it to honor me and that makes me feel very humbled and grateful.

On bold moves

This week I made the bold move of increasing my T3 dosage. To many that may seem like no news. For someone like me who went through an entire year of incremental increases of T3 gradually exceeding the dose my body could tolerate it is a bold move indeed.

I will try to provide a short timeline for those who are interested otherwise skip down to “Along came T3”. I started my T3 only in April 2010. I decided to try T3 only because nothing was helping an irregular heartbeat I had suffered with for about a year prior to starting T3-only.

When I was first diagnosed with hypothyroidism about 15 years ago I was prescribed what I now call Syncrap, T4-only. Then around 2005 I got tired of always needing to increase my thyroid meds and stopped taking them. Just for the record, that was not a good idea. This in turn eventually caused my adrenals to burn out, a.k.a. adrenal fatigue. Finally in about 2007 I started seeing Dr. Robert Bruley in Linden Hills, MN. He put me on compounded T3 and T4 adjusting the T4 according to my symptoms but keeping the T3 very low.

I stayed on T3/T4 for a year or two but my heart continued to give me troubles. I knew from my symptoms that this was not a weak heart or blocked arteries. It would come on at certain times of day and certain times of day it would be non-existent. Exercise didn’t bring it on, stress didn’t bring it on but when it came on it was so severe it would make me cough as if I had asthma.

Finally in late 2009, I convinced Dr. Bruley to let me try Armour. I felt a drug that supplied me with T1, T2, T3 and T4 was superior to one that was mostly T4 with a tiny bit of T3. I was probably correct but it still didn’t solve the problem. My palps were disturbing but thankfully not life threatening.

Along came T3

Then in April of 2010 I took a really bold step and started T3-only. I did so without Dr. Bruley but with the wonderfully helpful people on a thyroid forum who looked at my RT3 blood test and told me I had thyroid resistance and needed T3-only to clear the T4 that was blocking the all important T3 from entering my cells. These folks had all been under treated by allopathic doctors and some had come very close to dying as a result of T4-only thyroid drugs. They had found help in taking T3-only but first they had to clear the T4 out of the thyroid cell receptors and that my friends is the bit of Hell I mentioned earlier.

It took me 9 months to finally feel normal again after starting T3. That was about 4 months of checking my temperature three times a day. 5 months of hand tremors. 6 months of horrible sleepless nights. All that but my heart was beating quite regularly at this point, not all the time but more and more it was not beating irregularly and no more coughing, none. Finally at 9 months came a realization that I had to dramatically decrease my T3 dosage. I couldn’t take the sleepless nights nor shaking hands. I gradually dropped my dose to 37.50 mcg at dose where I felt comfortable and my heart still beat normally.

At that point I felt good and decided I just couldn’t keep concentrating on the negative. I needed to be well. I quit taking my temperature three times a day and got on with my life. I knew 37.5 mcg wasn’t enough but it was okay for a while. About 7 months ago I increased gradually to 50 mcg and have been at that dose ever since.

At 50 mcg I had almost normal energy, my hair loss decreased, my sleep was reasonably good. I even slept on my left side at night (on your left side you can hear your heartbeat and when it is irregular that is disturbing). However, I knew I should wake up feeling more aware and sharp than I was. Even when I started my B12 shots, instead of feeling much better I felt only marginally better and, as time passed I felt even more lethargic than I had been feeling.

The good news

I think this makes a short blog a long one and I am sorry for the verbosity but we now move onward. This week I finally took a basal temperature and when it read 97.3 I knew it was time to increase my T3 and I felt certain my body could handle an increase. On Tuesday I added 6.25 mcg to my 11 a.m. dose. The first day I felt no change whatsoever. The second day I could tell my pulse was slightly higher and my sleep was better.

So far things are working rather well. My temperatures were up on the second day but now four days later they are down again.  My blood pressure is closer to normal (109/70). My pulse is normal (70). I don’t feel so muzzy headed when I get up in the morning. With my temperatures hovering around 98 during the day I know I am not done. I need more T3 and will aim for 75 mcg as that is the level that most people need to feel really good but if at anytime the tremors return or I feel hyper the dose will change. That is the beauty of T3-only, you can lower it and see quick improvement.

Kris Insight

Here is why I think it is working this time. It is only a theory mind you but I think taking the B12 shots and increasing my cellular levels of B12 has contributed to allowing what T3 I take to actually get in to the cells. When the T3 is finally allowed in to the cells you go quite hypo (slight weight gain, sluggishness) because you are using it all and need more.

I also think my inadequate levels of selenium, zinc, CoQ10 and Inositol were possibly keeping my cells from clearing all the T4 out and/or allowing all the T3 in to the receptors. I am now taking therapeutic doses of all those nutrients to get my cellular levels up where they belong.

I could be wrong so don’t take me to task about my insight. I am not a doctor, I am a dental hygienist who has successfully treated her thyroid resistance with the help of the “village”. With that said, if you are still having troubles with getting your T3-only treatment to work for you (or any thyroid treatment for that matter) may I make a suggestion? Get a Spectracell Nutrient test. It is clear to me that we really must test everything we can at the cellular level not just a normal blood test.

If you want more information on the trials and tribulations of going it alone just go here. I have pages and pages of experience you can read through. Obviously I am still learning and I need to keep an open mind and an informed one but for today increasing a minute amount has made a difference and I feel good.

Santé,

Kris

On Being Hypothyroid and Other Minutaie

Spring has sprung in Minnesota and as always I am reminded that with spring there is renewal and with that rebirth comes a certain amount of joy. Perhaps Anne Bradstreet said it best in Meditations Divine and Moral (1655)-“If we had no winter, the spring would not be so pleasant: if we did not sometimes taste of adversity, prosperity would not be so welcome”.

I thought as this week brings with it the first official day of spring it might be timely to update my thyroid buddies on my current state of health. I will preempt everything by asking you to understand if I seem a bit sardonic. I admit to still being very superstitious about what I say and I know many hypothyroid people, and other “spoonies” will relate.

That said, here we go……..

T3 only and what works for me

I am still taking 50 mcg of T3. This dose seems to work pretty well for me even though by the dictates of the RT3 thyroid group it is not enough. My pulse is pretty normal and I am happy with my blood pressure. I generally have a pulse around 75-78 bpm and my blood pressure is pretty consistently at 116/69. After being outside and pulling weeds it is 122/74 with a heart rate of 81 bpm.

How I feed my adrenals

I still take 1/2 teaspoon of Celtic Sea Salt every morning and every afternoon. I salt my food heavily and often take extra salt if I feel my pulse is too high or if I have reason to perspire more than normal. A hot bath, a FIR sauna or this warm summer-like winter weather increases my perspiration and thus my need for sea salt.

I can tell by how I feel if I suddenly stand up whether or not my adrenals need more support. If I get light-headed I know I need to increase my sodium intake. It seems my adrenals, while healthier than they used to be, still require plenty of salt to feed their “condition” . Reminds me of the old adage “feed a cold, starve a fever” I feed them salt but hopefully starve them of nothing.

How to increase cellular deficiencies

Overall I think I am doing quite well but as you know my Spectracell test showed some deficiencies. I increased my Ubiquinol to 100 mg twice a day. I am taking 200 mcg of Selenium twice per day and  close to 64 mg of chelated Zinc per day. I was taking about 750 mg of Inositol per day but for some reason I didn’t feel any particular improvement and maybe felt worse.

Here is my new dog and pony trick. I finally got things straightened out between my doctor and a very helpful pharmacist at The Prescription Center in LaCrosse Wisconsin and my injectable B12 arrived post-haste. I will tell you more about injecting B12 next week after I have finally perfected the technique with Chloe’s assistance. I expect great things from an increased level of B12 and I hope not to be disappointed.

Exercise and FIR sauna resumed

I took several months off my normal frenetic exercise regimen around this time last year and I am finally getting back in to the swing of things. I am very careful not to overdo. In fact, I do something totally foreign to the before-adrenal-meltdown-me. I actually ask the SU if he will slow down when we walk together just to avoid taxing my system. I strongly believe that my heart palps were stimulated by an unnatural release of adrenalin and if just cooling it a bit avoids a reenactment I am content to be a wimp (yes, I have a problem with not pushing to the max).

Along with mild exercise (T-Tapp Basic, PACE walking, rebounder, Schwinn Airedyne) I have resumed some brief FIR sauna sessions. My basic routine is to exercise enough to sweat. While I am working out my sauna is warming up and as soon as I finish I hop in there for 15-20 minutes, salt water in hand. I have missed my sauna sessions but when you have adrenal stress the FIR sauna pushes you over the limits of what you can stand.

Kris Insight

Does all this mean I am as good as I can be? In one simple word, no. My heart still thumps occasionally, especially if I have too much caffeine or external stimulation. I have restless nights when I get up and sleep elsewhere so I don’t wake up the SU. I can only handle a tiny glass of wine unless I don’t mind being awakened by a pounding heartbeat that is in excess of 100 bpm. My mouth burns or tastes metallic most days and I occasionally have a hot flash that causes my face to flush (sex hormones are still not perfect).

Overall though, I feel fine. Not fine as in I don’t want to say anymore but the kind of fine that has a bit of cockiness and swagger. I saw this great quote on Facebook today that I strongly identify with,  “Life is not about waiting for the storm to pass…..it is about learning to dance in the rain”. I have learned to dance in the rain and I feel fine.

Santé,

Kris