Archive for the ‘T3 only protocol’ Category

Reading for Thyroid Health

???????????????????????????????It is officially autumn everywhere in the northern hemisphere. In south central Minnesota this morning, the long grass has a heavy coat of rime and mittens warmed my hands on the morning dog walk.

This, my friends, is the time of year when I break out Rosamunde Pilcher’s last book, Winter Solstice. Somehow her words help me adjust from the outdoor life of summer to the cozy, indoor life of winter with nary a whimper.

Suddenly a warming cup of tea seems so much more appealing or a morning coffee inside a cozy coffee shop in nearby Stillwater, Minnesota sounds heavenly. Cloudy, gray days become days of reading by the fire. Rainy days can even seem appealing when you read. This power of words on a page is remarkable and it reminded me that there is healing power in books as well. With the influence of words on my mind I thought I would share some thyroid resources with my readers.

Isabella Wenz

I actually have not read Isabella Wenz’ book but from reading the reviews I can tell that she has helped people immeasurably with her self-published book, Hashimoto’s Thyroiditis: Lifestyle Interventions for Finding and Treating the Root Cause.

She is a pharmacist with Hashimoto’s Disease. When she was diagnosed she made it her mission to find all the root causes of the disease and her research is invaluable to those of us with thyroid dis-ease.

I signed up for her newsletter and received her free first chapter and nutrient dense gluten-free recipes. In reading for exactly 5 minutes I have already learned something that is worthwhile. I eat out very seldom but when I do there is a good chance of cross contamination because I know very few restaurant kitchens have dedicated areas for preparing gluten-free foods.

There is a supplement that I am going to order that can help if I am exposed to gluten. Pure Encapsulations has a product called Gluten/Dairy Digest. As she says it doesn’t mean you can eat gluten again; it simply helps with cross contamination issues and I need that help if I want to enjoy an occasional meal out with friends.

Janie Bowthorpe

My favorite thyroid book and one I always recommend is Stop the Thyroid Madness. If you suspect you have thyroid issues or have been recently diagnosed with thyroid issues buy this book. It is also the best book to purchase if you have been on T4-only drugs (Synthroid, Levothyroxine) for years and really haven’t improved. This book has now been revised and in the second edition she has added information from patient experience and all the latest research.

In her book, Janie has compiled a list of “good docs” because honestly there are so many ill-informed doctors that one needs to know where to start. Every state should have at least one good doctor to help you finally get better. Unfortunately, Minnesota is rather lacking and I do not understand why.

Another issue that Janie’s book helps with are the questions that you as a patient need to ask your doctor. If you take your questions to your doctor and they laugh or are rude about their superior position and these silly questions, as she says, “fire” your doctor and find someone who doesn’t laugh at you or find your questions objectionable.

Thanks to books like STTM, doctors are no longer considered gods, they have been exposed for what they are. They are humans, just like you and me, with a certain set of skills (some with very little skill when it comes to healing a thyroid issue).

Finding a good doctor could be likened to finding good friends, some are more compatible than others and if you have thyroid problems you need a “good doc” to assist you on your path to wellness.

Paul Robinson

Paul’s book Recovering With T3 is the book to turn to if your adrenals become a hindrance to your healing journey. He also has a new book published The CT3M Handbook that goes into more detail on how to treat fatigued and worn out adrenals by dosing your T3 in a circadian rhythm.

His method has helped me a great deal. After being on T3 for two years I was still having issues taking enough T3 to eliminate symptoms. After I read Paul’s first book I started taking a dose of T3 at a time between 1-3 in the morning. After doing this for a while I was able to increase my dose to 50 mcg and with slight seasonal adjustments that dose has kept me pretty healthy for two years now.

I have never followed his method to the letter but my altered method has worked for me. For one, I couldn’t set an alarm clock to wake me up at an exact time every morning. If I did that I would just be up for the rest of the night. I am a restless sleeper at the best of times, so I awake many times to turn over or adjust my covers.

Since I am awake to turn over or adjust my body on the bed at 1, or 2, or 3 (not necessarily at all three times but at least at one time or the other) I just take my 25 mcg of T3 whenever I wake up to turn. That does mean that some days there are barely 4 hours between taking my dose and being up for the day but it hasn’t affected me negatively and I have only seen improvements. I advise anyone who asks what they should do about their adrenals to try Paul Robinson’s method as it is so much better than taking yet another drug.

Krisinsight

Those are only three books on the subject of treating thyroid disease but they are three of the most useful in my opinion. If you seek other voices on the subject there are many and they are all qualified in their own way. Researchers, doctors, and other people with thyroid issues like Mary Shomon, Broda Barnes, Mark Starr and  Datis Kharrazian. Any of their books will enrich your life and improve your health.

I love to read and I read daily, several different times of day no matter the season. Often books on health be it thyroid, diet, exercise, Reiki, chakras, and even meditation are my books to read when I want a break from housework. My Kindle is loaded with all of them. I get a task done and turn on my Kindle or my Kindle app on my iPad. I am presented with a plethora of books from which to learn something, anything.

That getting a task done to be able to read was a great idea I got from my sister-in-law, Jody. She gave me that very sage advice and I follow it to this day. She is an avid reader and in order to read as much as she wants she makes sure she accomplishes a work task like cleaning bathrooms, vacuuming the house, completing loads of laundry. When the task has been accomplished she makes a cup of tea and sits down to read.

Another bit of reader’s advice from a person who doesn’t sleep terribly well (me). I think t is important to read appropriately. I find feel good books (like Winter Solstice) are my bedtime books and mysteries (any book by Deborah Crombie for instance) are my get-me-out-of-bed books in the morning.

If you aren’t sleeping well and you love tension filled television shows before you go to bed or you must watch the horrible television news before you nod off, take a break, read one of the three books on healing your thyroid. You may just sleep a little bit better and, at the very least, if you don’t sleep well you can spend the night ruminating over the facts you have just discovered and put them to work for you the next day.

Santé,

Kris

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Cocoa Butter, Bodysound Chairs and Other Interesting Experiences

???????????????????????????????When I think of summer I always think of this Lovin’ Spoonful song from my youth, “Hot town, summer in the city, back of my neck gettin’ dirty and gritty. Been down, isn’t it a pity. Doesn’t seem to be a shadow in the city. All around people looking half dead. Walking on a sidewalk, hotter than a match head.”

To me that is quintessential summertime music and every time I hear it, or just conjure it up as I have this morning, I have a flash back. In my mind’s eye I clearly see the 16-year-old self. I am in my young skin, reclined in front of a fan in our family’s livingroom with my poodle Bridget by my side. I am barely dressed in short shorts and a tube top having just returned from our local lake, Baw Beese in Hillsdale, Michigan. I am tanned and fit as a young person often is but I also feel the agitation of youth that creates a certain unhappiness in many young girls.

44 years later I no longer dress so insufficiently. My house has central air and the angst of my youth is gone, replaced by a certain satisfaction that I am still alive. I take joy in dancing down the aisles of stores with my grandson. I sing at the top of my voice if I hear a song I love. I quickly become enchanted by a really good story yet can find comfort in the silence of my own company. By some standards I am old but age truly is only a number and in my heart I am still that sparsely dressed teenager who has found her soul.

My youth was an interesting experience that formed the foundation upon which I have grown up. My life continues to be a series of interesting experiences and this past month was no exception, so let’s talk about July.

Blood test results

I finally went in to LabCorp and had my blood draw for my “Weight Loss Panel” from Life Extension’s yearly sale. This was a very complete panel that cost me $97. You can click here to see everything it included. I really didn’t know what to expect but overall the results were positive and my doctor was impressed. However, I saw some things that were not ideal, so I will post those and explain why that isn’t ideal.

My FT3 was mid-range which is not ideal when you are on T3-only. Most people feel best when their FT3 is at the top of the range or slightly over range. Most doctors like the mid-range and that is a problem for those with thyroid disease because their doctor, like mine did, will tell them everything is really good yet they still feel bad.

I really don’t feel bad. My energy is okay. I probably don’t feel like running a marathon but I ran a 25K years ago and have never wanted to do it again. I sleep well most nights (but, not all. I add that caveat for the sake of good Karma). Here is what I notice, when I get up in the morning my eyes are very puffy. As I move around the fluid disperses and my eyes look more normal. I know this would improve if my FT3 were in the upper range.

While we are on the subject of thyroid results, some of you might be interested to know my TSH was .036. That caught my doctor’s eye and she told me to reduce my dose of T3 but I can honestly tell you a suppressed TSH is not unusual when on T3-only. I am not hyper and she knows that from observing me but her allopathic side immediately says reduce the dose of T3.

My total cholesterol was a wee bit high (226)  but my cholesterol ratio (2.5) and my CHD was <0 .5 . As always my HDL cholesterol was very high (90, anything over 30 is considered good), LDL was up but my VLDL was at a good level (20, anything over 40 is a problem). My Triglyceride level was good (98 with a range of 0-149). Overall my doctor looked at that report and said “great”. However, I know if my FT3 was in the top of the range my total cholesterol would come right down and everything else would look even better.

One more issue that may have something to do with taking T3-only (but not with being in the middle range of FT3). My fasting blood glucose continues to be high. However, my A1C was good and my fasting insulin was good. My doctor was not concerned but seriously it isn’t good to have a high (100) fasting glucose. I know my diet could and should be cleaner but even lowering my carb intake has little effect on my FBG. Many people who take T3-only have fasting glucose issues unless they follow a very low carb diet and that alone makes me want to try getting back on NDT at some point.

The itch of eczema

Yes, as I reported last month I still have eczema on my lower legs. I have tried various things to control it including having that blood test panel done because I feared my liver was the problem (it wasn’t, my liver numbers looked good). I followed the lecithin regime religiously for a month but the eczema came back as soon as my stress increased (when I found out my second poodle had a tumor and needed surgery).

I understand the need for the lecithin regime because eczema is a sign of inflammation in your body and increasing your levels of  phosphatidyl choline (lecithin is high in phosphatides) can lower inflammation in addition to a host of other positive effects on your body. However, it seems related to stress in my body and now I am working on releasing those pent-up emotions involved with an ailing furkid.

While I work on dealing with my furkid induced stress I have found that cocoa butter works as well as anything I have tried. It not only soaks into my dry skin nicely it smells dee-li-cious. I don’t itch as much (unless I shave my legs an event that has been reduced to once a week) and I walk around smelling like a gluten-free chocolate chip cookie.

If you have an interest in a really nice quality raw cocoa butter I bought mine at Amazon.com. It is by Plant Guru and it is delivered in a HDPE food grade jar. You must warm it slightly to apply it to your skin but it is food grade, so you can cook with it. Yea! Stay tuned I have plans to try making my own chocolate.

Energy healing at Soul Source Connection

It really has been a month full of exciting  and new experiences. Have you ever had the opportunity to try a session in a Bodysound chair? Late last week I had such an opportunity  at the office of  Reverend Kathryn Niflis Johnson in Woodbury, MN (Kathy@SoulSourceConnection.com). It was, to say the least, an interesting healing experience. I know, I know, interesting is vastly overused but this truly was interesting. I have never before reclined in a comfy chaise in a healer’s office, been gently covered by a soft blanket, light obscured by an eye mask and then been totally surrounded by vibration and sound.

This chaise works its healing magic by using a “neurophysiological mechanism that creates profound states of relaxation and meditation” (I felt a certain suspension between reality and a dream like state). The “second mechanism of action relates to the electromagnetic stimulation of the human energy system”. “Bodysound consists of amplified layered music played through transducers that generate sound and vibration. Synchronized electromagnetic fields affect the central nervous system and the human energy system.”

Now in my own words, it quite literally sweeps you away, in and out of a wakeful state of mind. I would doze off, dream and awaken only to completely lose the thought I had just had. I felt profoundly relaxed and Kathryn’s office setting makes you feel secure and cozy, so dozing off is not in any way threatening nor frightening.

I have had this feeling before and it was during my first Reiki healing session. I liken these healing sessions to being put in an hypnotic state of mind but Kathryn might not approve of that comparison because you are not hypnotized you are just profoundly relaxed. As with Reiki healing, during my Bodysound 52-minute session I had fleeting dreams and thoughts that would go away as suddenly as they came. I experienced a color show in my mind’s eye of vibrant purples and yellow and whites. When the session was complete I felt relaxed, happy and pleased that I had the experience much like you might if you had just had 52 minutes of healing massage.

Unlike with my Reiki sessions I have not experienced a healing effect from this particular healing modality. I believe from what I have read that a person needs more than one session in the Bodysound chair to affect healing. I am told by those who have experienced healing with the Bodysound chair it occurs with at least weekly use of the chair.

If you have an interest in a healing session in the Bodysound chair or you already have experienced healing with a Bodysound chair and would like to purchase one for home use you can contact Kathryn online: Kathy@SoulSourceConnection.com. Personally, I think it is well worth trying, it will do you no harm and it may help you on your path to better health.

Krisinsight

I hope, as I always do, that you learn something interesting when you read Krisinsight but know that this is my insight and my unique experience I share. I am a certified Reiki practitioner but I am not giving you advice nor telling you what works for me will work for you. Each body is unique which is what I think makes humans so marvelous. I know I have been able to improve my health using the modalities I share. If you choose to try them and they work for you I would be overjoyed but do so with the guidance of your medical provider and your own intuition.

Santé,

Kris

 

Back On The Tundra

IMG_1663Phew! At last I am back on target for my June post. I am overjoyed that June has arrived and with it warmer weather and the ability to be outside.

I am sorry for the delay in posting (you may or may not have noticed I didn’t post anything last month). Sometimes life just gets in the way but let’s get right to what’s been happening to fill my days.

Winter Blues take their toll

Life getting in the way, started as I shared with you last time, sometime late winter when we decided we were tired of Minnesota. Tired of Minnesota winter. Tired of the traffic in the Twin Cities. Tired of the big city, period.

When we left Idaho 8 and a half years ago we left more than a little bit of our hearts there, so we decided to check out Boise, Idaho as a possible place to live. Our hope was that Boise, being smaller might provide us with the big city advantages without the BIG city challenges.

Here are a few reasons for considering Boise, Idaho:

  • The climate. I actually like winter but not for 6 months. Winters exist in Boise but they are much shorter. Winters are cold but not as cold as Minnesota. Summers are hotter in Boise but it is a dry arid heat and is fairly short-lived. Spring, ah blessed spring, it is much longer in Boise as winter is mostly over by the end of February.
  • Proximity to our land and cabin. Boise is an easy two-hour drive from Fairfield, Idaho. Our isolated cabin is approximately 10 miles out of Fairfield, so we would have better access to our cabin without living in the mountains.
  • The people. The people in Boise seem really happy to be there. They are friendly and welcoming with the laid back attitude that is much more prevalent in the western United States.
  • Access to easy air travel. Boise airport is small and easy to use. There is a direct flight to Minneapolis at least twice a day.
  • Access to all of the western United States. There are a multitude of National parks within hours of Boise. The ocean is only 8-9 hours away and the ability to stay active and fit is amazing.

To be honest, we loved Boise. We were shown the town by a really nice realtor, Eric DeBord. Between Eric and a friend and co-worker of my husband’s we were introduced to every corner of the area and we fell in love with it all. We came within seconds of making an offer on a really nice house near Boise in a town called Emmett and then…….

What is really important in your life?

Suddenly yours truly had to evaluate what she really valued in her life. I think the SU already knew that winter was not the evil thing I had conjured up during one of the worst winters I have encountered in my 60 years. Family, friends and even where we live near Stillwater, Minnesota were all things we love. They were all things we valued, so at the last-minute, (and thanks to Eric being rather busy and not getting right on it) we did not make an offer on the house we liked.

I have to admit that the biggest reason I could not leave Minnesota was my bond with my grandsons. We had a two-week trip to Scotland in the midst of all this decision-making. Two weeks of thinking, considering and contemplating our lives.

When we got home, the first thing we did was see our boys and I have never, ever experienced the heart wrenching feeling of holding them in my arms after two weeks of thinking I was going to move away from them. My oldest grandson, who is now 3, had a meltdown when his mommy had to get home after being with us most of the day. That caused this Nonna to meltdown and in a flood of tears my decision was made.

So now what?

We could not tear up our roots in Minnesota and replant them in Boise no matter how much we loved the city and surrounds, not now anyway. I knew my friends would visit and I knew from asking them that we would stay in touch no matter where I lived. I knew leaving my house was not an issue. A house is just that, a box that houses a family.

The family is the soul that gives a house life and as long as I had my family with me I could live anywhere. My daughter and her family have no interest in leaving Minnesota, so I knew I needed my soul much more than a box.

It wasn’t as easy as it sounds but for the sake of keeping this post somewhat succinct let’s just say that over the course of two months other decisions were made that have now been undone. We are busily making our house more comfortable for us. I am getting my long-awaited spa (I will report on this later) which I am hopeful will allow more outdoor time during the long, cold winter months. We are going to make life here in Minnesota comfortable but whilst we are doing that we will enjoy the closeness of our family and friends.

Other news

As I also mentioned in my last post, in the midst of all this palaver of moving away I took my first level of Reiki healing. Now that I understand Reiki and its healing abilities it has changed things for me. My Reiki training was the best thing I could have done during this time of upheaval.

I find Reiki has helped me deal with life and its ups and downs. My sleep has improved more than I can tell you and one reason is if I wake early in the morning I say my Reiki mantra and perform Reiki on all my chakras. Before I know it I am back to sleep, and it is a deep restorative sleep.

I am also more meditative either through meditation or just Reiki self-treatment. I have found an inner calm that I have never possessed before. I am even doing yoga and signed up for Yoga classes at the nearby Pure Yoga studio.

I feel like a new person and I believe I owe much of this inner peace to the calm that Reiki instills. I look forward to my second level of Reiki training this summer. It seems that the more I know about Reiki, the more I want to know, so now I am even considering becoming a Reiki Master. Aside from an increased knowledge of Reiki, and its history, the master level would allow me to teach others this fabulous healing modality.

Krisinsight

I have already shared much of my insight with you in the words above. I mentioned last time that I am much healthier than I was which is still true. I think just as a reminder that I still have things to share there have been some ups and downs with my thyroid in the last month. I will be brief but hopefully enlighten those who share my dis-ease.

Since my last post I have increased my dose of T3 from 50 mcg. to 62.5 mcg. Now I cannot seem to stabilize my temperatures. One day they are close to 99, the  next day at the same time they are 97.8 (as they are right now at 2:30 in the afternoon and I just took a 12.5 dose of T3). I am concluding that it is possible that my dose of T3 is actually too high and my adrenals cannot support it but there are many things to be considered.

My reasons for increasing my T3 a few weeks ago were my basal temperatures were incredibly low (one morning my basal was 97.3). I increased by 6.25 mcg but my basals did not come up to a normal range of 97.8-98, so after a few weeks I increased my dose to 62.5 mcg. After about 10 days my basal temperatures are now closer to normal but my daytime temperatures are much too varied and, to me, that is indicative of too much stress on my adrenals.

For those of us who ride this roller coaster we know the ins and outs and ups and downs of thyroid dis-ease. There are many reasons that things can suddenly change, adrenal fatigue is only one possible cause, so I have to consider all things.

For instance, I know that it takes 6 weeks after making an overseas trip (one in which you cross several time zones) to get some semblance of normalcy. I have not been home from Scotland for 6 weeks yet, so perhaps that is causing some of my issues.

Another reason for possible variation is that the Cynomel could be from a bad batch or a new formulation. I did inquire about this possibility and was told the pharmacy was unaware that there were any other complaints and/or changes. By the way, for those on ERFA NDT, I did recently read that people are having hypo symptoms and the thought is the maker changed the formulation. Knowing that this happens all the time and no one is informed of the change, it is possible that something changed with Cynomel.

I also know that for me, and for many others, if we take too much T3 it can lower our temperatures, so the one way that most people can tell if they need more thyroid medication, our body temperature, becomes invalid. Paul Robinson’s book on Recovering With T3 deals with this subject very well and I know what I need to do is some testing and then consultation with Paul or the RT3 group to rule out any of those reasons.

First, with a blood test, I need to see where my FT3 is and if it is not in the upper range I know I actually do need more T3. If it is in the upper range and my temperatures continue to vacillate then I need to test my adrenal health with a diurnal cortisol test through Canary Club.

To this end, I recently took advantage of Life Extension’s blood panel sale getting a very complete blood panel including all my sex hormones, CMP, CBC, cortisol, insulin, A1C, FT3 and TSH for $97.50. Now I need to get to Labcorp in Edina, MN for my blood draw and I will have more information at my fingertips to help me and/or the group figure out what is happening on this exciting ride.

The good news, because there is always good news, is my energy is good. My sleep is great. My mood is happy and upbeat. Overall, most people with hypothyroidism would be happy to be where  I am at the moment but I know this body temperature issue is not right. I can tell when my temps are falling, as they are right now, because my toes and fingers start feeling very cold, so as always the quest continues. Where it takes me only next month will tell.

As for next month, I think I will stay on track for what Krisinsight currently entails, a pursuit of optimum health. I feel I have survived a crisis of small proportion. Perhaps turning 60 was more upsetting than I understood and having dealt with all the possibilities for change I learned that life as it is, is really quite good. So thank-you for bearing with me and I look forward to sharing more insight in the coming months.

SANTÉ,

Kris

 

Myxedema Coma

IMG_1917 (2)Another week has come and gone and as with all weeks there were ups and downs. I had the joy of meeting up with friends on not just one day but two with lots of healthy laughter and some moments of poignancy. My birds entertained me royally from my kitchen window and my garden produced a plethora of multicolored beans.

On the downside our own private Idaho seems to be surrounded by forest fires that are spreading precipitously every day thanks to high winds and no precipitation. Our cabin is small and on the side of a mountain, so we watch and worry about seeing it every morning when we check our webcams. My prayers go out to all those who live and work in the area of the fires as these fires threaten not just their mountain cabins; the mere lick of a wind-swept flame could put their families in harm’s way.

While not really a downside the more serious issue of my health was discussed with my homeopathic/MD doctor and we are now trying to decide what all my food sensitivities are. There is a blood test I could do for $750 (“Should you win the lottery, or somehow find yourself with some spare cash.”) or I can keep a food diary and see if I can figure out what causes my burning mouth syndrome. Suspects include rosemary (for the moment) but who knows I haven’t kept a food diary in a long time and while this issue has plagued me for several years I can never connect it to anything in particular.

Anyway I wonder how your week was, did you have any health revelations? Did you see friends and spend lots of time laughing and enjoying just a touch of civil disobedience? Whatever your week presented you with I hope it was a week not wasted with something learned every day and every moment experienced even if not always enjoyed. After all even the bad things in life are to be appreciated. When you conquer the “bad things” you feel such a sense of relief and contentment.

I forgot my T3

One of my “Oh No” moments this week was being contacted on Krisinsight by a group member/friend. Her note stated that she was flying out-of-town for the weekend and she forgot her T3. Would she be okay? At first I panicked for her because there is a good chance she wouldn’t be okay.

After I gathered my wits, which can often be scattered under stress, I had some suggestions. What I didn’t want to tell her was the possible consequences of not taking your T3, especially if your thyroid no longer makes its own hormones, so I avoided the bad stuff and just tried to think of possible solutions.

Myxedema Coma

One consequence of not taking your T3, in case you didn’t know by now, is a condition called myxedema coma (a decompensated thyroid). If your body isn’t getting T3 (whether from taking T3 or taking a natural desiccated thyroid product or Syncrap)  you suffer loss of brain function due to low levels, over an extended period of time, of thyroid hormone.

Symptoms are severe mental changes, hallucinations, edema, difficulty breathing, abnormally low body temperature (80 degrees is possible) pleural effusion, etc. Myxedema coma is more likely caused by the failure of the pituitary gland or hypothalamus to make the thyroid hormone it is capable of making or you are not supplying the hormone in the case of someone who is already being treated for hypothyroidism.

There are various triggers for myxedema coma. Triggers might include various drugs (especially narcotics, anesthesia), stroke, trauma, heart failure, internal bleeding and last but not least forgetting to take your thyroid hormones. Ultimately a person who suffers myxedema coma may die if not treated promptly and correctly. This was the news I did not want to relay to my friend.

What can you do?

Instead I told her the first thing that popped in to my head. Perhaps she could try to find someone in her host city that would have T3 she could use until she got home. This would necessitate contacting the RT3 group and crying out for help which may or may not be very productive but it was the first thing I thought of and relayed to her.

Another idea would be to look up a health food store (even Wholefoods) that carries thyroid gland supplements. Taking that will supply you with T1, T2, T3 and T4, so once you are home you might have to go through a clearance process but at least you would prevent an issue of myxedema coma.

As I thought about this more I realized the best thing to do is contact your doctor or pharmacist and see what they can do to help you. In her case, she contacted her compounding pharmacy on Saturday morning. She was able to find a compounding pharmacy that was open  near her hotel and they were able to fill her prescription. That is where she left me as I am sure she got busy with the business of a class reunion and hopefully attended all the functions with no repercussions nor lack of thyroid medication.

Krisinsight

Thankfully most of us reading this will never suffer from myxedema coma but I thought it was something everyone should be aware of in case, just in case. I always travel with medication in several different places (but never in checked baggage) just to be sure I don’t leave home without my T3. It is a worry because to forget your T3 at home can have serious ramifications especially for those of us on T3-only.

I wonder if another good practice would be to investigate possible sources of thyroid meds wherever you are going. Google health food stores in the area and perhaps even call or email them and ask if they carry thyroid gland supplements. Talking to your doctor before you leave might serve the purpose of letting them know, if they get a call from out-of-state, you might have to call in case of emergency. I know I could do this with my homeopathic/ MD because she is a one person practice and sooner or later she would respond. Can you think of any other possible solutions to what could be a deadly omission to your holiday plans?

Summer’s Bounty Recipe

IMG_2211 (2)

My garden continues to produce but it is being very parsimonious this year. To use the word “bounty” is generous but it sounds good to my ears. Any other word would just  sound pathetic. For instance this year I planted an entire long row (at least 6 feet long) of little round French carrots and got perhaps as many as 12 carrots. Each one being precious I have only tasted one or two but yesterday I pulled six of them, washed and polished them like precious gems, and roasted them for supper.

When I was done I had these gorgeous carrot tops resting on my kitchen counter and I couldn’t throw them away, so I got this great idea of making pesto with them and found a recipe to provide amounts and possible ingredients. Did you know that carrot greens are high in potassium? We thyroid types always need potassium, so what better way than eating carrot green basil pesto?

Carrot Green-Basil Pesto

  • 1 large handful of carrot leaves without stems
  • 1 large handful of basil leaves
  • 2 large cloves of garlic
  • 1/4 cup sunflower seeds
  • 1/4 cup pumpkin seeds
  • 0r instead of seeds 1/2 cup toasted walnut pieces
  • 3/4 cup oil of your choice (I used 1/4 flax-seed oil and 1/2 cup olive oil)
  • 1/2 teaspoon Celtic sea salt
  • generous grinding of pepper

I put this all in my processor in the order as written and processed it until I had a smooth paste. It was pretty thick, so I added more oil but you could add the lemon juice the original recipe called for. Despite the fact that the article said carrot leaves can be bitter, the pesto is quite sweet and pleasant and I will use it as I would any pesto on gluten-free pasta, on sandwiches made with gluten-free bread or as a dip for fresh vegetables. Bon Appetito!

Santé,
Kris

 

Summer and Other Things

IMG_1917 (2)Last week I was sitting on my canopied deck sipping my milky Keemun Congou tea when my ears were suddenly assailed with the chattering of birds. Not just any birds, no, not these birds, these are MY orioles, the Eastern and Orchard orioles. When they arrive in April and May they tell me their winter stories of joy and sorrow. Stories about their long flight north and who made it and who didn’t. They tell stories of their hunger and show their appreciation by gobbling bowl upon bowl of the purple goo that I lovingly put on my deck railing. After all they need the energy to start their nests and raise their broods and their time with me is brief. Within weeks of first hearing their songs they will nest and their visits will wane.

Then around this time of the summer (August) they return in profusion. Only this time they are accompanied by their young, their very demanding, very hungry offspring who have gone from infants to teenagers in a matter of weeks. They yell at their parents and flap their wings demanding more and more jelly be put in their mouths. At times I will look out at the crab tree they sit in and it will be aflutter with a dozen or more orioles and I just smile. These orange and black lovelies make my summer days complete (so I guess you could say they complete me).

Sometimes I am left heartbroken by their stories and it seems every year there is one heartbreaking tale to be told. One year it was a female oriole with a tumor on her beak. Every day she returned for more jelly and would often sit right by me and eat what she could get in her mouth and stare me in the eye. She struggled and I cried but every day she returned and every day we “talked”. One day she came and I could tell she was suffering; really just asking me for relief but coward that I am I knew Mother Nature would offer her solace soon enough and let her be but kept her fed as best I could. Then one day she didn’t come anymore and I knew her suffering was over. I still cry over her (I cry now telling her story).

My orioles will soon be migrating south to escape our brutal winter winds. They will bulk up for the next month on cheap, Target grape jelly because that is the jelly they have requested (believe me I have tried organic this and that and the bowls sit there and are emptied in to the trash) and as soon as Mother Nature alerts them they will leave for Florida and Mexico. I will miss their discussions and their bossy attitude about my deck but I know, as sure as I know winter will come in Minnesota, they will return and I will joyously welcome them home.

Little things can be important

For some my orioles are little unimportant things but to me they are a huge part of my summer joy, so it is with other things in life. Take a night of sleep for instance. For some people sleep is never a problem. For others, like my daughter, sleep is a precious commodity as her nights are still interrupted by the demands of a hungry, growing baby boy. For me, sleep continues to be one of those perplexing issues. I have nights when I sleep the sleep of kittens and then other nights I am fitful and restless all night long and morning simply cannot come soon enough.

This past week I finally took the bull by the horns because I had regularly been waking up all night long with horrible dreams and aches and pains. I decided I had to experiment a bit and suffer the consequences if need be. I have been doing the CT3M dosing for T3 for about two months I think (time does fly so it may be longer than that).

My normal dosing for some weeks has been to take 25 mcg of T3 sometime between 1 and 2 in the morning. My next dose of 12.5 mcg would be between 8-10 a.m. and my final dose around 5-6 in the evening. Almost every night I was waking at midnight in a real huff as the result of some horrible dreams (nightmares). I would settle back down but my sleep wouldn’t be good until I took that 1-2 a.m. dose of T3. After that dose I would sleep like a kitten again.

Think Kristin, think

This got me to thinking, if I am waking at midnight and only sleeping well after I take 25 mcg of T3 at 1 or 2 in the morning, I am not providing enough T3 at the midnight dump. When my demand for T3 is at its greatest (typically midnight) my T3 was mostly used up having not taken any since 5 p.m. Perhaps if I went back to taking T3 at bedtime, lights out, my sleep would improve and there wouldn’t be the shocking nightmares.

In the past week I started dosing my T3 more like this:

  • Bedtime (8:30-9:00 p.m.)- 12.5 mcg
  • 3 a.m. -25 mcg
  • 12 noon-12.5 mcg

Krisinsight

Here is what I think was happening. I am not saying I am right but it is what I think. At midnight I was running low on T3 after not taking any for 7 hours. If you don’t take enough T3 to feed your thyroid your adrenals will kick in some adrenaline to compensate. That mass-produced adrenaline startles you awake and even can produce nightmares. You heart will beat rapidly, your breathing will be elevated and you are  in a sweat, like a hot flash.

By taking a bedtime dose of T3 when my demands are their greatest I have T3 to offer my body and it uses every bit but I don’t wake up with a jolt, nor in a sweat. I have pleasant dreams as I did last night that I can’t quite remember. I was recalling with vividity my disturbing dreams during those weeks of taking my last dose at 5 p.m..

I knew my body was getting enough total T3 because of my recent blood test and that was really perplexing for me. I would go over and over all the possibilities and sometimes even feel somewhat hopeless. I mean, would I ever sleep normally again? Was it time to do a diurnal cortisol test (well, yes it is but money, money, money) and see how the old adrenals were faring?

I don’t know everything and every day I learn something new or I consider it a wasted day. That said, I know one thing for sure, there will be further tweaking. I know, as almost all thyroid resistance folks know, this thyroid stuff is a continual journey and I will not be put off by the need to make a change to improve my quality of life. That is my solemn promise to self.

Like my orioles come back every spring I will return next week. Until then have a great week and if you need help please feel free to ask. Ask me, ask your friends, ask your medical provider because by dealing with the crisis you will find an answer.

Santé,

Kris

Using Up Spoons

I am sitting at my ‘puter this morning looking, when I am not looking at my screen, at a very cloudy morning. Last night was a very entertaining night if you like summer storms and sirens at 3:45. Personally I could do without either when I am trying to sleep and especially when I am sleep deprived and quickly using up my daily spoons.

Have you ever heard of the “Spoon Theory”? It is a term coined by Christine Miserandino on her site called But You Don’t Look Sick. I think it applies to lots of folks who have chronic illness and autoimmune disorders. Hashimoto’s falls under that category in my opinion.

What is the Spoon Theory?

To explain it very simply, and I repeat the word simply, it says for people like us (apparently sick people need only apply the “spoon theory”) there are only so many “spoons” that we can use up in a 24 hour period. Normal healthy folks have unlimited spoons and can handle whatever challenges they face. For “sick” people once you have used up all your spoons you will suddenly find yourself totally spent and on the couch or in bed for days.

So take a handful of spoons and call that your day. For each activity or stressful situation take away a spoon. Once your hand is devoid of spoons you have spent your days worth of spoons and you will either go to bed or find a place to collapse because it is inevitable. I feel like my hands are empty and I can’t even find a spare spoon in the house, anywhere.

How do you use spoons?

I don’t know how others do it but I had a most welcome guest for two and a half weeks. I loved every minute of my time with her BUT I could never get my sleep. We went to bed later than normal and I woke up every morning at the same time, somewhere between 5 and 5:30.

Since she has returned home I still can’t seem to get over my deficit. First it was a visit from my daughter and grandson, then it was a bad heart day and then it was the weather. I love, love, love having my daughter and her adorable son stay overnight but the bad heart day and weather I could do without. This morning after a storm that woke me at 3, too early for even the early riser that I am, I sit here feeling very sleep deprived with that all too familiar fog in my brain and flutter in my heart.

Once the spoons are on the floor….

I don’t really have an answer for any of us except to learn how to never exceed your handful of spoons but that means bypassing some really happy moments in life. I am simply not able to give up the smile days just to reserve spoons, so with that in mind I will tell you what I think happens to me when I use up my spoons. As with most things I share on Krisinsight it is just a theory, I have no proof.

I don’t get sick very often, so I never consider myself a “sick” person. What does seem to happen is my adrenals finally spin out of control and that releases unwanted adrenaline. The adrenaline is what keeps me moving and enjoying life but it is artificial energy and I pay a price for that expenditure, heart palps. The culmination of the two and half weeks of entertaining a visitor and then the overnight with the daughter and grandson and an accidental increase of T3 was an afternoon of a rapidly beating heart and general distress.

I actually felt sick and tired for most of the afternoon after my daughter left with her smiling baby but when it came time to go to bed I was electrified. My breathing was shallow. I jumped at the least bit of stimulation like a dog barking or spousal unit sneezing. When I took my pulse it was 98 my blood pressure was 122/83 which is high for me and I was feeling it. I think I had finally dumped all my spoons on the floor with a CRASH and now it was time to pick up the pieces.

How do spoons end up scattered on the floor?

What I almost did yesterday was lower my dose of T3 but yesterday I took my morning temperature and decided I wasn’t hyper when my temperature at 9 a.m. read 97.6. At 5 p.m. it was a perfect 98.6. I was right I wasn’t hyper but I had spent all my spoons. This morning my blood pressure is 97/65 and my pulse is 75 and that is after a cup of tea and my morning dose of T3.

I was thinking of lowering my T3 because why? Because I inadvertently increased it three days ago. I was divvying up my 56.25 mcg and dropped the extra 6.25 mcg chunk in the 10:00 a.m. slot, so the amount was actually 12 mcg. Those 6.25 mcg pieces are so small you can’t see them if the room is dark and you are presbyopic. I thought the other half had disappeared and would find it on the floor when it clinked in the vacuum cleaner.

The next day when I tipped 10 a.m. in to my hand and clumsily dumped the dose in my mouth my eye caught sight of the “missing” piece. I judiciously put it under my tongue anyway and let the gods take it from there. That day was fine, no side effects of the increased dose. The next day was the day from Hell but not until the afternoon and evening (when my cortisol tends to be high when tested) and that set me up for a rough night. Thankfully I experienced only one night of being shocked awake by adrenaline stimulation, last night it was a legitimate thunder and siren awakening.

Kris Insight

My guess is last week when I was hanging on for dear life to my last spoon the last thing I should have done is increase my T3. It quite literally broke the horse’s back and my heart is always the recipient of such stupidity. I know I need to be taking more T3 and I am gradually building my dose in the direction of 75 mcg but increases when you are feeling worn out and tired are not a good idea. It impacts your adrenals significantly and they react by producing more adrenaline and that causes heart palps and irregularity.

My advice to my readers with adrenal fatigue or just weak adrenals and on T3-only is do not increase your dose when you are spoonless. Even if all the signs are pointing at a need for an increase, low temperatures, low blood pressure and pulse DO NOT INCREASE YOUR DOSE. Nothing will happen if you wait a few days or a week or even a month. Increases should only be done when you are feeling well rested and up for the challenge.

I hope you will tune in August. At that time I will have my blood test results back and will share them with you. Life Extension had their yearly sale and I just can’t pass up the opportunity to see how the old bod is running. I really want to see how my FT3 is and find out how I am doing with inflammation and female hormones. Stay tuned and have a great and rejuvenating July.

Happy Fourth of July,

Kris

How Do You Know When to Increase?

I am writing this post on the day before Mother’s Day because I get the honor of having my daughter, her husband and my grandson with me tomorrow, Mother’s Day. What a great gift she is giving me as I know my daughter hates getting in the car and traveling across town but she is doing it to honor me and that makes me feel very humbled and grateful.

On bold moves

This week I made the bold move of increasing my T3 dosage. To many that may seem like no news. For someone like me who went through an entire year of incremental increases of T3 gradually exceeding the dose my body could tolerate it is a bold move indeed.

I will try to provide a short timeline for those who are interested otherwise skip down to “Along came T3”. I started my T3 only in April 2010. I decided to try T3 only because nothing was helping an irregular heartbeat I had suffered with for about a year prior to starting T3-only.

When I was first diagnosed with hypothyroidism about 15 years ago I was prescribed what I now call Syncrap, T4-only. Then around 2005 I got tired of always needing to increase my thyroid meds and stopped taking them. Just for the record, that was not a good idea. This in turn eventually caused my adrenals to burn out, a.k.a. adrenal fatigue. Finally in about 2007 I started seeing Dr. Robert Bruley in Linden Hills, MN. He put me on compounded T3 and T4 adjusting the T4 according to my symptoms but keeping the T3 very low.

I stayed on T3/T4 for a year or two but my heart continued to give me troubles. I knew from my symptoms that this was not a weak heart or blocked arteries. It would come on at certain times of day and certain times of day it would be non-existent. Exercise didn’t bring it on, stress didn’t bring it on but when it came on it was so severe it would make me cough as if I had asthma.

Finally in late 2009, I convinced Dr. Bruley to let me try Armour. I felt a drug that supplied me with T1, T2, T3 and T4 was superior to one that was mostly T4 with a tiny bit of T3. I was probably correct but it still didn’t solve the problem. My palps were disturbing but thankfully not life threatening.

Along came T3

Then in April of 2010 I took a really bold step and started T3-only. I did so without Dr. Bruley but with the wonderfully helpful people on a thyroid forum who looked at my RT3 blood test and told me I had thyroid resistance and needed T3-only to clear the T4 that was blocking the all important T3 from entering my cells. These folks had all been under treated by allopathic doctors and some had come very close to dying as a result of T4-only thyroid drugs. They had found help in taking T3-only but first they had to clear the T4 out of the thyroid cell receptors and that my friends is the bit of Hell I mentioned earlier.

It took me 9 months to finally feel normal again after starting T3. That was about 4 months of checking my temperature three times a day. 5 months of hand tremors. 6 months of horrible sleepless nights. All that but my heart was beating quite regularly at this point, not all the time but more and more it was not beating irregularly and no more coughing, none. Finally at 9 months came a realization that I had to dramatically decrease my T3 dosage. I couldn’t take the sleepless nights nor shaking hands. I gradually dropped my dose to 37.50 mcg at dose where I felt comfortable and my heart still beat normally.

At that point I felt good and decided I just couldn’t keep concentrating on the negative. I needed to be well. I quit taking my temperature three times a day and got on with my life. I knew 37.5 mcg wasn’t enough but it was okay for a while. About 7 months ago I increased gradually to 50 mcg and have been at that dose ever since.

At 50 mcg I had almost normal energy, my hair loss decreased, my sleep was reasonably good. I even slept on my left side at night (on your left side you can hear your heartbeat and when it is irregular that is disturbing). However, I knew I should wake up feeling more aware and sharp than I was. Even when I started my B12 shots, instead of feeling much better I felt only marginally better and, as time passed I felt even more lethargic than I had been feeling.

The good news

I think this makes a short blog a long one and I am sorry for the verbosity but we now move onward. This week I finally took a basal temperature and when it read 97.3 I knew it was time to increase my T3 and I felt certain my body could handle an increase. On Tuesday I added 6.25 mcg to my 11 a.m. dose. The first day I felt no change whatsoever. The second day I could tell my pulse was slightly higher and my sleep was better.

So far things are working rather well. My temperatures were up on the second day but now four days later they are down again.  My blood pressure is closer to normal (109/70). My pulse is normal (70). I don’t feel so muzzy headed when I get up in the morning. With my temperatures hovering around 98 during the day I know I am not done. I need more T3 and will aim for 75 mcg as that is the level that most people need to feel really good but if at anytime the tremors return or I feel hyper the dose will change. That is the beauty of T3-only, you can lower it and see quick improvement.

Kris Insight

Here is why I think it is working this time. It is only a theory mind you but I think taking the B12 shots and increasing my cellular levels of B12 has contributed to allowing what T3 I take to actually get in to the cells. When the T3 is finally allowed in to the cells you go quite hypo (slight weight gain, sluggishness) because you are using it all and need more.

I also think my inadequate levels of selenium, zinc, CoQ10 and Inositol were possibly keeping my cells from clearing all the T4 out and/or allowing all the T3 in to the receptors. I am now taking therapeutic doses of all those nutrients to get my cellular levels up where they belong.

I could be wrong so don’t take me to task about my insight. I am not a doctor, I am a dental hygienist who has successfully treated her thyroid resistance with the help of the “village”. With that said, if you are still having troubles with getting your T3-only treatment to work for you (or any thyroid treatment for that matter) may I make a suggestion? Get a Spectracell Nutrient test. It is clear to me that we really must test everything we can at the cellular level not just a normal blood test.

If you want more information on the trials and tribulations of going it alone just go here. I have pages and pages of experience you can read through. Obviously I am still learning and I need to keep an open mind and an informed one but for today increasing a minute amount has made a difference and I feel good.

Santé,

Kris