Last night, I sat outside with my SU while soft, white flakes of frozen precipitation gently fell on my shoulders. The water in our spa was warm. The air was quiet. It was that kind of hush that only comes with freshly fallen snow. It was sublime.
Suddenly the quiet of the evening was interrupted by a very distinctive and recognized sound, a certain woosh of feathers and a coo. I identify birds by their calls, so I looked around for the source because I knew it sounded like mourning doves but this it too early.
If this were the halcyon days of spring instead of the dead of winter “my” doves, letting their presence be known, would not be unusual but doing so on February 3 is most uncommon. I finally spotted four of them, one lone scout and three fluffy companions resting comfortably in a decorative crab tree not far from where we lounged.
This morning, I was somewhat relieved to read that while they prefer to spend all year in the Greater Antilles and most of Mexico (and who doesn’t?) they will also stay as far north as central Minnesota even through our nasty winters. I like to think they know they will be safe at my house where the feeder is always full and the bird bath is warm but still winter is winter and we have months of it left to endure.
In the middle of our winter blues spring tries to sneak in with the coo of one of the loveliest birds I know. Winter is here to stay for a while but seeing my doves has given me a certain confidence that spring will arrive sooner or later.
I was spurred to action on my blog by the recent conversations on Facebook. If any of my readers are not on Facebook and are not participating in the conversations on the thyroid groups you should know that our supply of T3 from south of the border has dried up.
I do not know all the details but here is what I do know. I placed an order the first of January 2015. Payment was accepted and I received a note that it had been shipped. I paid no more attention until this discussion came up on Facebook.
After I read several comments it seemed clear that yes, payments are being accepted but it doesn’t mean they have T3 on their shelves. One person who has been in touch with the pharmacy said they told her their credit card system is antiquated and doesn’t know how NOT to accept payment.
That comment prompted me to check the email that had been sent right after my order was placed in January. I clicked on the “track your package” link provided and much to my surprise it took me to my last order that had indeed been delivered. In November. It was not, as I thought, an email regarding my January order it was an automatically generated email from months ago.
There I said it, I think those of us who order from this pharmacy are screwed. I don’t think they are being intentionally dishonest but their supplies ran out and they don’t know how to handle the situation. There aren’t just one or two people not getting their T3, their lifeline, there are many of us who placed orders as far back as November who are not going to be getting our T3.
Many folks are now reporting that they have been sent an email saying that the transaction “failed”. Those folks feel that this means the problem is not temporary it is permanent. Why the manufacturer would suddenly stop making Cynomel, I do not know but it is starting to point in that direction. Fingers crossed that this an erroneous conclusion and they will fill their shelves again and we will receive our T3.
Okay, so now that those of you who get your T3 from Mexico know your T3 supply is in danger it is time to pursue another source. I have resorted to begging my doctor to provide a prescription for an American made T3 from Perrigo (formerly Paddock). It is gluten-free unlike the American Cytomel which, by the say, is not guaranteed to be gluten-free. She will not be willing to prescribe the dose I need but anything is better than nothing until I figure this out. At the moment I have three months of Cynomel left and I can supplement what she is willing to prescribe to get my normal dose.
I suppose another choice is to try a natural desiccated thyroid med again. The most popular one right now is Westhroid. It is gluten-free and most people are feeling really good taking it.
Armour is another choice but most people feel it doesn’t work as well as it used to. Armour has never recovered their reputation after they apparently made a formula change several years ago that they would not acknowledge but the humans taking it noticed a decline in their health.
ERFA (Canadian NDT) has reportedly been causing a return of hypo symptoms, just like Armour. Seriously, if a pharmaceutical company makes a formulation change why not tell the consumer that they have made a change no matter how slight or inconsequential. Patients need to be told before they start feeling a return of hypo symptoms, or worse, are sick on the couch again.
Thyrogold is an over-the-counter natural thyroid med that Dr. Lowe (who died three years ago after a bad fall and trauma to his head) developed and it is now being sold by his widow, Tammy. It sounds great but the cost might make it prohibitive. The general starting point is 2-3 capsules a day and 90 capsules are $54.95 plus shipping. That is approximately $60 a month if taking 3 capsules a day.
If you know of other possibilities please let me know. I will share the ideas on the Facebook groups but it will also help those who read Krisinsight and are not on Facebook.
This blog entry has been almost entirely my viewpoint but let me share one more thought with you. Allopathic medicine is seriously damaged. Our system is so dysfunctional that it is harming the patients who have to use it. Doctors simply do not understand the thyroid and how it affects our bodies when it doesn’t work properly. They go by the book and the book is old and out of touch with reality.
We are forced to treat ourselves because our doctors look at low FT3 numbers and say all is well. They do not understand RT3 ratios and as long as you don’t have Wilson’s syndrome they tell you all is well when your ratio is revealing a thyroid resistance issue. When you take NDT or T3 your TSH will most likely be suppressed when you finally feel good. However, when your doctor sees a suppressed TSH they assume you are over medicated even when your body temperature is low, your pulse is low and your blood pressure is low. Come on, doc, you should know better.
Sadly, too many doctors tell patients who say they just don’t feel good on their current dose of T4 thyroid meds that they may need psychiatric help. Or worse than that, if a patient asks too many questions they are rudely informed that they are Google experts and will be dismissed as patients if they continue with this nonsense.
Ugh. This is our reality. I faced it five years ago and solved my heart problems (inappropriate release of adrenaline) by treating myself with T3-only. It wasn’t easy and I don’t recommend it to anyone but I did solve my problem so effectively that the SU has completely forgotten how ill I was 5 years ago today.
My wish for all of us. That some day this will change. I pray that “some day” is just around corner.